Standard of care. It’s a phrase that gets tossed around a lot. Let me tell you a story about what it should not be, especially for a person in a drug research trial. Before I begin, a note on my background. I grew up as the daughter of a clinician-researcher who is to this day,…
Tag: Personal
What Doctors Don’t Know: Brain Injury Equals Weight Gain
Weight loss. The entirety of North American society is grappling with weight loss. With diet. With exercise. With staying at a healthy weight. But believe it or not, people with brain injuries struggle even more than the typical North American. We struggle more because we may no longer be able to perceive that one’s stomach…
My Last Meal
Talking about Port with a friend today reminded me of my last meal. I don’t mean the meal I had last night or the one I had the night previous to the crash that altered my life, but the last one I cooked and baked and wholeheartedly threw myself into for friends and family for…
Support Gives Life
An elderly gent said to me: you look…you look alive! This gent has known me a long time, starting in what I call my hell years after I had suffered a closed head injury aka traumatic brain injury. Back then, I used to see him weekly, yet when I spotted him one time in a…
The Sleep Study
It’s me and the men. Fat men. Snoring men. Young men. And extremely picky men. That latter is a new one to me in my five (six?) sleep studies. Seriously, does this guy think a hospital is going to purchase his preferred kind of sheets just for him? It’s not like in the pre-bed bug…
The New Sleep Specialist
A new year, another new doctor. The first thing my new specialist said as soon as I sat down was: I know what your problem is. Pause. You have physician fatigue. No kidding. Astute. I don’t recall another doctor noticing that on their own or, if have, acknowledging it openly to me. I immediately paid…
New COTA Case Manager, A Total 180
Boy, did I fall down on the job. I thought I’d written a final follow-up post on my case manager saga. I hadn’t! Oops. In a nutshell: a total 180. I met with my new case manager in the afternoon. He spent one and a half hours familiarizing himself with my needs, writing down a…
The Sleep Questionnaire Marathon
Sleep disturbances and brain injury go together like bread and butter. But I had sleep problems even before my injury. I’ve had four (five?) night-time sleep studies and one day-time one, the latter as part of the first night-time study. They’re, uh, fun. Think round things glued with concrete to your skull, straps round your…
Novel Genesis
I’ve written a biography and three novels, and each has come to me or started in a different way. A conversation with my former boss at Judy Taylor’s funeral turned the light bulb on over my head to tell Judy’s mind-boggling story, to begin my long, long research and writing journey. For my first novel,…