Oct 212014
 

This is not an easy post to write — I don’t even know if I want to write it. Deep breath. Here goes (assuming autocorrect doesn’t stop me in my tracks!).

Personality re-creation (shifting) is a neurophysiological process that is shaped by psychology, as I see it. Emotionally, it gets a little hairy. Think adolescence times 1,000,000.

I suppose when your brain’s emotional centre and/or networks are damaged — and really how much do we know about how emotion works — and it begins to heal and memories are reconnecting to the emotions that would have happened if they’d been working at the time and if those memories are of abandonment, by one friend after another, of the person you were and the injured personality you became, you’re probably going to get hysterical.

Hysteria: “general state of extreme fear and panic — freaking out.”

That would pretty much describe my state this past weekend. Add in a soupçon of personality shifting back and forth for several hours, and I pretty much had a spectacularly bad 48 hours. I highly doubt it’s over. I have rarely been so acutely conscious of how critical social is to me as a member of the species Homo sapiens sapiens. It sucks to be human. I’d rather be a jaguar at times like this.

But we human beings are not jaguars.* We’re lions in our prides or elephants in our herds. We become not normal when left to be by ourselves, especially in times of crisis, disability, ill health. Even hermits need one connection to another. I know a doctor who is the one and only friend of a man and sees him regularly but not too frequently. That man is mentally ill, afraid of people, yet even he needs a friend.

We see the Africans who’d rather contract Ebola than not hug and touch their dead loved ones as abnormal. But they are the normal ones, doing what even elephants understand is necessary to recover fully and well from the grief of losing an integral part of our social identity. We are the abnormal ones who so fear our social biology that we have memorials not funerals, don’t want to “interfere” then wonder why people suicide, so fear suffering we forsake the quiet joys of being with another as they walk a difficult path.

So I am on my path today with fewer people and now mostly professionals than when I was smashed onto it back in 2000. It really wasn’t until 2001 when I began to recognize that I was not on my 37-year long path from birth to just before my brain injury, but on an entirely new one. Confusing, incomprehensible, and one I thought I could navigate on my own because I had a plan even though the people who professed to love me the most were the first of my friends and family to leave me or say, figuratively speaking, hey, you’re on your own, we don’t want to hear you whine about your nonexistent so-called brain injury.

I’ve been thinking about this — some days, I think being pure intellect sans emotions has its advantages. I think not being able to feel that abandonment at the time was one of the few brain injury blessings. But I’m feeling it now, and, oh joy, re-living it too as I start on another new path feeling alone. This time I know how the walking will go. As Cliff Taylor told me when I was interviewing him for my book Lifeliner, if he and Judy had known what life would be like with her living on artificial feeding at home, they would never have had the courage to do it. It’s the knowing that makes setting out again on a path of healing frightening unlike back in 2001. This path is a branch off the brain-injury-healing path, called “get yourself a new personality and try to stay sane path.”

Some people can see or hear or sense the intensity of my sadness; others just see the calm exterior. Some health care professionals would see my grief at me dying back in 2000, an experience I share with too many with brain injury, and label it depression so that they wouldn’t have to deal with something so highly complex to treat and emotionally devastating to witness. When I’m calm, I’m aware that at any moment, I can break down but I cannot feel the sadness or be able to identify exactly what I’m feeling until someone labels it for me. (When the label is wrong, I can sense that it is because it doesn’t resonate deep within me.) I guess this is what psychodynamic therapy is for, to learn to feel and identify emotions when they’re at normal levels, not freak out levels.

But unless there is one person in my life who may not know about this personality shifting but is willing to learn, is willing to stick with me, can be trusted to hear and help with the worst aspects of it, then the freak outs will continue, for this is one change I cannot cope with and guide myself through alone.

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* See Google search for articles on human sociality.

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  • Marie

    Shireen,
    I just discovered your blog after I was searching on Google for ‘resetting the hypothalamus.’ I was up until after 1 a.m., and had to force myself to go to bed, because I just kept reading posts. I was in a car accident about 2.5 years ago, and while my injuries don’t come close to the level you’ve suffered, I can identify. My physical (whiplash) injuries had been worked through with physical therapy within 6 months of the accident, but I am still dealing with brain injury issues, which have moved into the neuroendocrine area starting over a year ago.
    Because I don’t live in or near a major city, I have had to take to pushing and educating my doctors, pushing for testing, pushing for treatment, doing my own research…which then gets them to thinking I must not be *that* injured. No, I’m just angry that I *have* to take this on, on top of everything else. What if my injuries were even worse? As a single person, living alone except for a pre-teen child, I’d have had absolutely no hope for even the amount of recovery that I’ve had so far.
    So, this post is the one that finally got me to write. I’ve made the same realization lately. Years ago, when I was going through the end of an abusive marriage, I had far more support. I made friends among others going through the same thing. Over the last year, as my health has taken a downturn, I have had to realize that I have nobody, except a few people I communicate with online, but that’s not quite enough anymore. I’ve thought of the exact same studies – about how humans need minimum 8 hugs/day. How elderly people who live alone have higher chances of Alzheimer’s or other dementia – things I’m at higher risk of anyway, due to my injury. I can do all of the different types of brain hacks I can find, but I can’t make a single person in this world give a crap about me. And like you, I wonder how much better off I’d be now if even one person in my daily life had cared.
    Sorry this is long. I just wanted you to know that I get you. And that you’re amazing.

  • Thank you so much Marie for taking the time to write me. It made my day!